Interviews

Am I Normal? – Gay with Cerebral Palsy

April 25, 2013
Photo by Coco Young

Edward is a 25-year-old writer and editor living in New York City. He recently wrote an extremely funny and touching book about his life as a gay guy with cerebral palsy. The book will be out next year. I talked to Edward about dating, anal stretching, and what is means to “water your self-esteem plant.”

This may sound strange, but we’ve met in person many times, and I never knew you had cerebral palsy until you told me. I just thought you had quirky mannerisms.
Most people can’t tell. It’s like: He’s just gay! Gay or disabled. Not clear.

Lol. So is your CP mild?
It’s mild, but it’s still there. I have a limp. I was born with mild cerebral palsy, and CP really affects you the first 12 years of your life because you’re growing, so you have a lot of surgeries, and blah blah blah. I had leg braces and shit like that. Then, when I was seven I had an Achilles tendon lengthening surgery. So that was pretty intense. I had a body cast for two-and-a-half weeks, and I was in a wheelchair for three months. But it all levels out–you kind of plateau in a weird way–when you hit puberty. I was in physical therapy ever since I can remember. When I was younger, I had this fantasy about going to physical therapy and finding a CP BFF, and we’d commiserate about how sometimes we drool and how hard it is to put the key in the door.

What was your first dating experience like?
Well I came out of the closet when I was 17, my junior year of high school. I had met this guy who I was obsessed with, Sam. I remember seeing him across the quad wearing this Smiths t-shirt and thinking, “I need to be with him.” He was Mexican, tan and really beautiful. I knew he was gay – muscle shirts, The Smiths–hello! So I became friends with him, but I knew if I wanted to be with him that I had to be out of the closet. So I came out to everyone I knew in two weeks. It was great, I threw a party.

Did your parents care?
No, they didn’t give a shit. Give me a break. I don’t relate to the whole ‘tortured coming-out, Glee, It Gets Better’ thing. Being gay has always been pretty good for me. But anyway Sam and I started dating and it was my first teen love experience. I lost my virginity. It was really great.

Did Sam know you had CP?
Yeah, everyone in my town knew. I don’t think Sam knew exactly, but he obviously knew something was wrong with me. I remember talking to him about it one night when he slept over, and he just said, “I don’t care, it’s fine.” It was so validating to hear, because I genuinely thought I was going to be alone forever. Like I remember when I had my self-affirming “I’m gay” moment. I was 12 and watching Cruel Intentions, and I was like “Whoops, I like Ryan Phillippe better than I like Sarah Michelle Gellar.” I remember thinking, “This is it for me, no one is going love a gay guy with CP.”

Gay and CP–double whammy.
Oh yeah. It was like, “I’m fucked. See ya, that’s a wrap for me!” So getting validation from someone like Sam who was able-bodied and attractive was very, very crucial. I needed that. And we had a lot of sex.

What was the first time like?
Well the first time hurt a lot. What happened was – this is so insane – we tried to do a position with my legs in the air. Now, because of the CP my muscles are very tight. I am not flexible to say the least, honey. My legs can sort of go up–I mean, it’s not Cirque Du Soleil–but they go up to the point where you can get in. But it ended up not really working, and we had to stop a few times. In the end we just did it face-down with him on top of me. But I didn’t really like it, because I couldn’t see him.

Yeah, legs-up anal is too much for a beginner. I think you have to stretch it out first.
Yeah, exactly. For the first two weeks I thought something was wrong with me because sex hurt so badly. But of course, once my asshole got stretched out it was like ‘Oh hey girl hey,’ forever.

So you became more sexually confident after Sam?
Well when we were dating I was still violently insecure. Sam was really beautiful and I was this schlubby, awkward-looking 17-year-old with CP. I always had the suspicion that people were looking at us thinking, “What is Sam doing with him? He can do so much better.” Then there was this horrendous girl at my high school. She hated herself, so she was a mean girl. And at one point she said to a group of my friends, “What the fuck is Sam doing with Edward? He has cerebral palsy. That is sick.”

What a cunt.
Yeah, hearing that was horrifying. It was someone vocalizing my worst fears.

So what happened sex-wise after Sam?
Well we dated for eight months, until high school ended. Then after that me and my best girlfriend both dated the same guy for the entire summer. She would hook up with him, then I would go over and hook up with him. It was some 18-year-old Dreamers shit. But he was definitely gay and couldn’t get hard for my friend. She felt really embarrassed about it, so he told her that he had testicular cancer and that’s why he couldn’t get hard from a vagina.

Casual. So what happened in college?
Well post-high school I was feeling pretty sexually confident, and I was moving to San Francisco for college. I thought it was going to be my mothership, since San Francisco is obviously the gayest place on earth. But I ended up being celibate for two years!

Why?
Basically what happens with me is, having sex is like watering my self-esteem plant. But if I go a period of time without sex, then I go back into my, ‘I’m ugly, no one wants me because I have CP’ mindset, and part of me just shuts off completely. I become afraid of men. And that’s what happened in SF.

I relate to the “self-esteem watering” thing. I sort of hate it, because I don’t want my confidence to be directly related to someone wanting to have sex with me. I want to feel good because I create cool things, ya know? But I also can’t help that sexual attention makes me feel good.
Yeah, of course. Shit, how do we get more confidence?

No clue. So anyway, no one in New York seems to know that you have CP. How come?
I’ll give you the full story: When I was 20-years-old I got hit by a car in San Francisco, and I developed this thing called compartment syndrome. The car hit me and crushed my elbow, which cut off circulation to the muscles and they started to die. I was in the hospital and I had four surgeries in three weeks. Then, when I moved to New York after college, people assumed that I was just an accident victim, and I just didn’t bother to correct them.

Why not?
I was never comfortable having cerebral palsy. It’s just something that no one can ever understand–they are confused by it, it’s taboo. You could get hit by a car today, but you could never have CP. So people are a lot more comfortable with the idea of me being “the guy who got hit by a car” than someone who has been living with CP his entire life. And you can’t turn down sex with someone who got hit by a car–that’s just fucked up.

My ex-boyfriend was disabled; he wore leg braces and walked with crutches. He did a similar thing to you–if someone asked him what was wrong, he would say he had a broken leg.
Yeah, like it’s none of their fucking business. It’s a can of worms that just doesn’t need to be opened every goddamned day. So moving to New York was like an instant confidence boost again, because it was like I didn’t have CP.

It was an opportunity to be reborn.
Exactly. And I started dating again in a real way. I moved to NYC when I was 21, and for the next four years there was never a lull. I felt so empowered, so cute and sexy. No one asked me what was wrong. It was the life I was always meant to have. And I got really busy with work and was earning writing success, and was hooking up with guys I never would have thought I’d have a chance with.

But wait, pretty soon everyone is going to know you have CP, because you wrote a book about it.
Yeah, writing the book was my way of coming to terms with it. It’s hard because I’m having to come out to my friends in New York, but I’m so ready. I actually think a lot of my current issues with my disability stem from me not being open about it.

So what’s your dating life like now?
To be honest Karley, I’ve been out of commish for a little while. I haven’t had sex in nine months.

That’s pretty long.
It’s a pregnancy.

So why no sex?
I don’t know. I was really busy with my book, especially since I was working full-time as an editor while writing it. But then, it’s typical of me to create excuses not to date someone. But now I’m making a conscious effort to make that part of my life again. I want to have a lot more sex.

Would you ever do stereotypical gay guy Grindr hookups?
No. I’m not wired that way. I’m too shy. I’m also scared of using OkCupid and then showing up with a limp. It’s a serious issue for me.

Would you ever join a fetish site in order to meet guys who are specifically attracted to people with disabilities?
No, I don’t want to feel fetishized. I need to know that someone would still like me regardless of disability. It feels like I’ll never have enough validation. Especially living in New York. It’s always like, “Why are they with me when there is a Ryan Gosling-esque guy around the corner?” There is this disconnect because I think I am an awesome person, I think I’m funny, I think I’m smart, but when it comes down to matters of sex and attraction, I don’t think I can measure up.

That’s weird, especially within our alternative, creative scene where people sort of praise weirdness. I feel like most interesting, creative people appreciate alternative forms of beauty. I’m never attracted to the classically beautiful type.
I wish I could find the guy version of you, Karley. Everyone is beautiful, it’s a dime-a-dozen. Give me something unique. I’m more attracted to that, too. I like guys with character.

Comments

Comments

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25 Comments

  • Reply LOL April 25, 2013 at 9:03 pm

    we get it bro. you have a disability fetish

    now step away from the wheelchair.

    • Reply Nina Neon April 26, 2013 at 8:28 am

      There’s not enough people discussing or writing about sex and disability. I am in a wheelchair, and I enjoyed this post much more than your wannabe-funny comment, ‘bro’.

  • Reply Christie April 25, 2013 at 9:45 pm

    What are the differences between preferences and fetishes? Are fetishes just unusual preferences?

    (I genuinely want someone to respond)

    • Reply Em April 26, 2013 at 3:59 am

      A preference is just like, hey I really feel attraction to brunettes and I might tend to approach them more often, but if I meet an amazing person who is blonde I’ll totally marry them too. No issues.

      A fetish is not just being attracted to something – it’s being so attracted it’s basically the only thing that gets you off, you can’t really get into sex people who don’t have this specific feature, you objectify and sexualize people with this feature in creepy ways, and you’ll pursue relationships with people who have this feature even thought you don’t really like anything else about them.

      • Reply Em April 26, 2013 at 4:11 am

        Obvs a simplistic explanation- there’s a lot more, and fetishes can also be a specific practice that gets you off, unrelated to a person’s features. I was just trying to define fetishization of a person or group of people.

    • Reply FreakyV April 26, 2013 at 4:37 am

      A fetish is a fixation (kind of an obsession) , a preference is something you prefer, but you aren’t fixated on it. Well that is my version anyway. I don’t have any Fetishes anymore, my food fetish was killed once it messed up my vaginal flora;)

    • Reply karleyslutever April 26, 2013 at 12:14 pm

      A preference is something you prefer. A fetish is: a form of sexual desire in which gratification is linked to an abnormal degree to a particular object, item of clothing, part of the body, etc. Example: Victorian men developed fetishes focusing on feet, shoes, and boots.

      • Reply ghost April 29, 2013 at 5:51 pm

        See Karley Googled “fetish” “what is a fetish” don’t know why person asking the question didn’t. People are online, and ask questions on message boards, wait days for a random answer, when they can just fucking Google it and get an instant answer, that is more legit that say “random persons opinion”. It’s like you people don’t internet…

        • Reply Christie May 1, 2013 at 1:16 pm

          i guess i asked because i know basically what a fetish is and i was just wondering to what extent whether something is a fetish or not is based on opinion or if there’s a really definite and concrete difference between fetishes and preferences. i still feel like the difference is sort of subjective and the boundary isn’t that clear. if somethings “weird” it’s more likely to be considered a fetish even if the person isn’t devoted to it enough for it to be considered an obsession.

        • Reply Christie May 1, 2013 at 1:51 pm

          i basically, because of that i’m more interested in “random person’s opinion” than something legit.

          i feel kind of stupid when someone responds to me with a verbatim dictionary entry, but honestly i know that it’s my fault for asking my question badly and not being clear about the response i wanted. if i came off as an idiot who doesn’t know how to google i understand that i guess.

  • Reply FreakyV April 26, 2013 at 4:43 am

    This was a sad post (did have some funnies in it) and I think so many people can identify with it, even without having CP. That rejection fear, based on ignorant people’s reaction.

  • Reply Alice April 26, 2013 at 5:20 am

    Loved this, Boo x

  • Reply Nina Neon April 26, 2013 at 8:25 am

    that was really interesting, thank you, Karley.

  • Reply c April 26, 2013 at 4:14 pm

    i went on an okc date with a guy who had a really strong facial twitch once. i dont think its something he had to address it in his okc profile. you either like a guy or you dont, and his twitch had nothing to do with the fact that i wasnt feeling it (umm he admitted to using only disposable plates and utensils at home because he didnt like doing dishes??????). i hope that one day youre not afraid to use okc. if the guy you meet does care about your limp, then hes not worth dating anyway!

  • Reply meghan April 26, 2013 at 6:04 pm

    nice interview:)

  • Reply La Déterrée April 26, 2013 at 9:11 pm

    This guy sounds adorable! Great interview.

  • Reply steph April 27, 2013 at 7:28 am

    I agree with freakyv, I think everyone can definitely relate to that intense fear of rejection and not being good enough. Not saying that I think I know what it’s like to have CP but if no-one’s flirting with me I feel less awesome. Love that am I normal is back :)

  • Reply jg323 April 27, 2013 at 1:18 pm

    diggin’ the new banner!

    sometimes simple changes make a site look more professional.

  • Reply Cara April 27, 2013 at 8:40 pm

    Oh Karley, why did you change your banner/slogan? Its too Apple-2013-web2.0-sterile-ish :( I liked the old one better!

  • Reply Lala April 28, 2013 at 6:27 pm

    Great post!

  • Reply Ketta33020 April 28, 2013 at 6:30 pm

    O

  • Reply Hazel May 5, 2013 at 11:03 am

    Surprised noone has made this observation, but I reckon this guy had no problems coming out as gay what he really has to come out as is CP. And he is, go him!

  • Reply ian May 11, 2013 at 1:55 am

    What’s the book going to be called?

  • Reply Briana Hodge May 15, 2013 at 8:09 am

    I also have CP and I live a normal life I am also a writer and I found this very inspirational.

  • Reply Martin May 21, 2013 at 5:24 am

    Is Edward hot ? I wanna meet him but can’t tell by that artsy photo the accompanies the post.

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